About Us
Our members
Spoonies Unite is founded by women living with chronic illness, for those who understand what it means to navigate life with limited energy and invisible pain. We’re a small, heart-centered team based in Southern California, dedicated to building a safe, supportive online community where spoonies can connect, share resources, and thrive — together
How we got started
Spoonies Unite was born out of a shared truth: living with chronic illness can feel incredibly isolating. After years of navigating fibromyalgia, Ehlers-Danlos Syndrome, and other invisible illnesses on our own, we realized that what we needed most wasn’t just better tools or treatments — we needed each other. We are currently a small circle of spoonies supporting one another through flare-ups, doctor visits, and daily frustrations. We hope to grow into a full community built on empathy, resilience, and real connection. We came together so no one else would have to face this journey alone.
What we do
At Spoonies Unite, we believe that community care is just as vital as self-care. Through moderated forums, virtual meetups, resource sharing, and peer-led support groups, we create a safe, judgment-free space for people with chronic illness to be seen, heard, and supported. We amplify marginalized voices, promote disability awareness, and offer tools for navigating the daily realities of life with pain — all while fostering connection and hope. Our mission is to uplift and empower the chronic illness community, one spoon at a time.
Mission Statement
Spoonies Unite is dedicated to empowering individuals living with chronic illness by fostering connection, compassion, and community. Our mission is to provide a safe, inclusive, and supportive space where people facing chronic pain and invisible disabilities can find understanding, share resources, and thrive together.
Our vision is to create a world where no one living with chronic illness ever feels alone — a world where support, understanding, and meaningful connection are always within reach.
Our Core Values
Compassion
Inclusivity
Inclusivity
We lead with empathy, recognizing that every persons journey is unique and valid.
Inclusivity
Inclusivity
Inclusivity
We welcome all people living with chronic illness, disability, or pain — regardless of diagnosis, background, or identity.
Empowerment
Inclusivity
Authenticity
We believe in giving our members tools, knowledge, and encouragement to advocate for themselves and thrive.
Authenticity
Accessibility
Authenticity
We hold space for honest, real conversations about the ups and downs of chronic illness — no toxic positivity, just real support.
Community
Accessibility
Accessibility
We are stronger together. Our peer-led approach ensures that no one has to navigate life with chronic illness in isolation.
Accessibility
Accessibility
Accessibility
We strive to make our community, resources, and events as accessible as possible — honoring the diverse physical, cognitive, and emotional needs of people with chronic illness and disability.